Transition to the standard models of drug supply for patients with rare diseases

A. V. Saversky
President «League of patients», Member of the Expert Council under the Government of the Russian Federation

Provision of necessary medications for patients with orphan diseases is concidered. The problems of the current legislation in the subject area are stated. Conclusions are made on the need to rethink the situation of drug provision. Proposals are made to develop a State program «Dangerous Diseases of High Cost».

drug provision, orphan diseases, legal status of the drug, standards of medical care